A time of Mourning and Celebration
As I sit here and write this email I am torn between two emotions. They are mourning and rejoicing. I have been introduced to 3 very special children. All three are special needs. Two of them have been diagnosed with Trisomy 18 (Eliot and Claire) and the 3rd (Ella) was born with some neurological problems due to having contracted menengitis (sp?) before she was born. I have followed the blogs of all 3 for a while now. Ella was born to some friends of ours from our church in Dallas. The other 2 I was introduced to through her family. As I checked in with each of the blogs today I was heart broken to learn that little Eliot has been called back home to Heaven. His parents are strong and to be commeneded for the work they have done. They have asked that people not be sad but to rejoice that he is now home and is whole again.
Here is my understanding of Trisomy 18. There is a 3 chromosome that grows on the 18th chromosome, hence the name of the disorder. Most children with Trisomy 18 do not make it birth, they usually die in the womb. Those who are born usually do not live for more than just a couple of days. On the rare occasion some of them almost make it or make it to their first birthday before they pass. In the little bit of research I have done only a small handfull (a little over 10 have actually lived to be teenagers).
I ask that if you get a chance please take the time to look at the blogs of these three special children. I know that you will be blessed by them and their parents the way that I have.
Eliot: http://mattandginny.blogspot.com/
Claire: http://clairecox.blogspot.com/
Ella: http://themitchells1016.blogspot.com/
Have a wonderful day and please remember to tell your family and friends how much you love them. This is a reminder of how fragil life really is. Sean and I love ya`ll. We are very blessed to have each and every one of you in our lives!
(The settings for the blog have been changed. You no longer have to be a blogger to post a response.)
